My son Cade was born on February 17, 2018 after a 12 hour labor, that required the NICU to be on standby. When my water broke, there was meconiun staining, so they were prepared for a problem- but I could have never been prepared for the next 82 days of my life.
Just an hour after being born, Cade has low blood sugar, so low that it did not register a number. He was then taken directly to the NICU, and due to complications, I was placed on bedrest. It was 30 hours before I would see my precious boy again. It was reported that he had several apnia spells during his first night and had to be intubated. After further studies they thought he had a heart condition, and he was immediately life flighted to Pittsburgh Children’s Hospital. I will never forget that night, I was stuck in the hospital until the next day- so my husband drove the 2 hours to Pittsburgh to be with our sweet boy.
When he arrived at Pittsburgh they discovered he not only had extremely low blood sugar, but also was having continuous seizures and had a brain bleed, but still no cause. The first week was filled with many struggles, not knowing if he was going to survive and what his life and his abilities would be. In the NICU his team of doctors would round every morning and I can say it would be the deciding factor for the day. Bad news meant a bad day, and good news meant hope for a good day. As the days wore on, his seizures were under control and he was stable, and also diagnosed with bacterial meningitis. We were told it would be a 27 day stay until he finished his course of antibiotics. So as the 27 days came to a close, we were expecting to go home, not realizing that due to his medications and brain issues, he would struggle with eating. We ended up being discharged to a rehab unit where we spent the next 45 days praying he would learn to eat. He unfortunately did not, so we were taken back to the NICU so he could have a G-tube placed and we could go home! The surgery was May 1 and went great! The next week was full of learning how to care for him and preparing for discharge! We finally were released on May 8th.
I, as his mom, never left his side. I have slept at a bedside, cried through all hours of the night, and been awaken by scary beeps. I am now the proud mom of a NICU survivor!